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Directory of European Resources
    The EUROCRAN Project
        Project Members
        Current research projects
            Clinical Research Projects
                Surgical Trial
                    Scandcleft Protocol
                EUROCRAN Distraction Study
                NAS Unilateral Cleft Cohort Study
            Genetics research projects
                Population Based Gene-environment Interaction Study
                A Chromosomal Approach to Identifying OFC genes
                Molecular diagnosis of craniofacial malformation syndromes
                Listing of CFA genetic active research groups
            Directory of Resources
        Newsletters
        Support Team
        Project Meeting May 2004
            Sicily Catania
                Catania 1
                Catania 2
                Catania 3
                Catania 4
                Catania 5
                Catania 6
                Catania 7
                Catania 8
                Catania 9
                Catania 10
                Catania 11
                Catania 12
                Catania 13
                Catania 14
                Catania 15
                Catania 16
                Catania 17
                Catania 18
                Catania 19
                Catania 20
                Catania 21
                Catania 22
                Catania 23
                Catania 24
                Catania 25
                Catania 26
                Catania 27
                Catania 28
                Catania 29
            Mount Etna
                Mount Etna 1
                Mount Etna 2
                Mount Etna 3
                Mount Etna 4
                Mount Etna 5
                Mount Etna 6
                Mount Etna 7
                Mount Etna 8
                Mount Etna 9
                Mount Etna 10
                Mount Etna 11
                Mount Etna 12
                Mount Etna 13
                Mount Etna 14
                Mount Etna 15
                Mount Etna 16
                Mount Etna 17
                Mount Etna 18
                Mount Etna 19
            Taormina
                Taormina 1
                Taormina 2
                Taormina 3
                Taormina 4
                Taormina 5
                Taormina 6
                Taormina 7
                Taormina 8
                Taormina 9
                Taormina 10
                Taormina 11
                Taormina 12
                Taormina 13
                Taormina 14
                Taormina 15
                Taormina 16
                Taormina 17
                Taormina 18
                Taormina 19
                Taormina 20
                Taormina 21
                Taormina 22
                Taormina 23
    Patient Support Groups
        Austria
        Belgium
        Bulgaria
        Denmark
        Estonia
        France
        Germany
        Hungary
        Ireland
        Italy
        Latvia
        The Netherlands
            BOSK, werkgroep Schisis
        Norway
        Portugal
        Slovak Republic
        Spain
        Sweden
        Switzerland
        Thailand
        United Kingdom
            Cleft Lip and Palate Association (CLAPA )
        United States
        Speech-related Support Groups
        Syndrome specific support groups
            Apert Syndrome
            Crouzon Syndrome
            Edward's Syndrome (Trisomy 18)
            Patau's Syndrome (Trisomy 13)
            Pierre Robin Sequence
            Stickler Syndrome
            Treacher Collins Syndrome
    Funding Agencies
        European Commission (EC)
        European Science Foundation (ESF)
        United Kingdom
        Denmark
        Iceland
        Finland
        Norway
        Sweden
        International Funding Opportunities
            National Institute of Dental and Craniofacial Research (NIH)
                NIDCR Extramural research programme
                1) Epidemiological and behavioural research in oral health
                2) Exploratory / developmental research grants
                3) International collaborative oral health research planning grant
                4) NIDCR clinical trial planning
            National Organisation for Rare Disorders (NORD)
            International Association for Dental Research
            Plastic Surgery Educational Foundation, US
    Example grant applications
        EUROCRAN Grant Application - Phase 1
        EUROCRAN Grant Application - Phase II
        EUROCRAN NAS - Phase B & C
        EUROCRAN-NAS
        EUROCRAN AM (Website) - Phase B & C
        EUROCRAN AM (Website) - CPF Technical Annex
    Eurocleft Clinical Network
        Project 1996-2000: overview
        Registered Clinical Teams
            Austria
                Graz
                Innsbruck (University Department of Maxillofacial Surgery)
                Innsbruck (University Department of Plastic Surgery)
                Klagenfurt
                Linz
                Salzburg
                Vienna
                Wels
            Belgium
                Antwerpen (Eeuwfeestkliniek and Medical Academy Centre)
                Antwerpen (UZA and KLINA)
                Brugge
                Bruxelles (Academisch Ziekenhuis-Vrije Universiteit Brussel)
                Bruxelles (CHU Brugmann)
                Bruxelles (Cliniques Universitaires St Luc)
                Gent
                Leuven
            Bulgaria
                Plovdiv
            Croatia
                Zagreb
            Czech Republic
                Brno
                Praha
            Denmark
                Aarhus
                Copenhagen (Cleft Palate Centre)
                Copenhagen (National University Hospital)
            Estonia
                Tallinn
                Tartu
            Finland
                Helsinki
                Oulu
            France
                Amiens
                Clermont-Ferrand
                Grenoble
                Lille (Hôpital Saint-Antoine)
                Lille (Hôpital Salengro)
                Nancy
                Nantes
                Paris (Hôpital D’Enfants Armand-Trousseau)
                Paris (Hôpital Robert Debré)
                Paris (Hôpital St Vincent de Paul)
                Strasbourg
            Germany
                Berlin (Free University)
                Berlin (Universitätsklinikum Charité)
                Bochum
                Erfurt
                Erlangen
                Freiburg
                Griefswald
                Hamburg
                Hannover
                Heidelberg
                Homburg/Saar
                Jena
                Landstuhl
                Leipzig
                Lübeck
                Mainz
                Marburg/Lahn
                München
                Rostock
                Siegen
                Würzburg
            Greece
                Athčnai
                Athénai (Hellenic Craniofacial Center)
                Thessaloníki
            Hungary
                Budapest (Cleft Palate Centre Madarasz)
                Budapest (Heim Pál Hospital for Sick Children)
            Iceland
                Reykavik
            Ireland
                Dublin
            Italy
                Bari
                Bologna (Ospedale Bellaria C.A. Pizzardi)
                Bologna (Policlinico S Orsola)
                Catania
                Ferrara
                Genova
                Milano (Istituti Clinici di Perfezionamento)
                Milano (Regional Centre for Cleft Lip and Palate)
                Napoli
                Padova
                Parma (Azienda Ospedaliera)
                Parma (Ospedale Maggiore)
                Pavia
                Pisa (Ospedale di Cisanello)
                Roma (Azienda Ospedaliera S. Camillo Forlanini)
                Roma (Istituto di Clinica Dermatologica)
                Roma (Ospedale Pediatrico Bambino Gesů)
                Rovigo
                Trieste
                Verona
                Verona
                Vicenza
            Latvia
                Riga
            Lithuania
                Vilniůs
            Malta
                Msida
            Moldova
                Chisinau
            Netherlands
                Alkmaar
                Almelo (Victor Veau Foundation)
                Amsterdam
                Amsterdam (AMC)
                Arnhem
                Groningen
                Leeuwarden
                Leiden
                Maastricht
                Nijmegen
                Rotterdam (University Hospital Erasmus MC-Sophia)
                Tilburg
                Utrecht
                Zwolle
            Norway
                Bergen
                Oslo
            Poland
                Bydgoszcz
                Gdansk
                Lódz
                Polanica Zdroj
                Szczecin
                Warsawa (Centre for Craniofacial Disorders)
                Warsawa (Medical Academy)
                Warsawa (Medical Centre of Postgraduate Education)
                Zabrze
            Portugal
                Coimbra
                Coimbra (Hospitais da Universidade de Coimbra)
                Lisboa (Hospital de Dona Estefania)
                Lisboa (Hospital S. Joáo de Deus)
                Lisboa (University Hospital of Santa Maria)
                Monte de Caparica
                Oporto (Hospital de S. Joăo)
                Oporto (Hospital Maria Pia)
                Vila Nova de Gaia
            Romania
                Brasov
                Bucharesti (Central Children’s Hospital Grigore Alexandrescu)
                Bucharesti (Maria Curie Hospital)
                Bucharesti (University of Medicine “Carol Davila”)
                Cluj-Napoca
                Târgu-Mures
                Timisoara
            Russian Federation
                Tver
                Yaroslavl
            Slovak Republic
                Bratislava
                Košice
                Banská Bystrica
            Slovenia
                Ljubljana
            Spain
                Barcelona (Hospital Sant Joan de Déu)
                Barcelona (Hospital Universitario Materno Infantil Vall D’Hebron)
                Bilbao
                Cordoba
                La Coruńa
                Madrid (Hospital Materno Infantil 12 de Octubre)
                Madrid (Hospital Nińo Jesus)
                Madrid (Universidad Europea)
                Murcia
                Palma de Mallorca
                Santiago de Compostela
                Tenerife
                Valencia
            Sweden
                Göteborg
                Linköping
                Malmö
                Örebro
                Stockholm
                Umeĺ
                Uppsala
            Switzerland
                Basel
                Bern (Inselspital)
                Bern (Lindenhofspital)
                Geneva
                Lausanne
                Zürich
            Ukraine
                Kiev
            United Kingdom
                Belfast
                Birmingham
                Cambridge
                Liverpool
                Manchester
                North Thames
                Nottingham
                Northern and Yorkshire
                Oxford
                South Thames
                South Wales/South West Managed Clinical Network
                Swansea
                Scotland (CLEFTSIS)
                    Aberdeen
                    Edinburgh
                    Glasgow
        Consensus Recommendations
            Policy Statements
            Practice Guidelines Part I
            Practice Guidelines Part II
            Practice Guidelines Part III
            General Principles Governing Record Taking
            Timing of Minimum Records
            Record Taking Methodology - Photography
            Record Taking Methodology - Dental Casts
            Record Taking Methodology - Speech
        Reported data
        Representatives
        Register with the Eurocleft Network
        Project 1996-2000 Summary Book
        Newsletters
    World Health Organisation (WHO)
        WHO publications
    Subset of European Birth Defects epidemiology
        European CFA Occurrence - Cleft Palate
        European CFA Occurrence - Cleft Lip and Palate
        ICBD
        IDCFA
            CFA data: cleft lip and cleft palate
            CFA data: standard tables
    Surgical Missions
        International Surgical Missions
            Philosophy of volunteer missions
            Goals of international missions
            Preparation for a surgical mission
            Recipe for success: the dos and don'ts
            How host countries can ensure the success of a mission
            Future of surgical missions
            References
        Rotaplast
        Operation Smile
        The Smile Train
    Non-Governmental Organisations
    Free Access to Online Journals
        Smile Train Online Cleft Library
        Health Inter Network (HIN)
        The Cochrane Library
            Accessing the Cochrane Library
            Searching the Cochrane Library for CLP information
        PubMed
            Searching PubMed for CLP information
    Useful Links
        Links to Organisations for Health Care Professionals
            Australasia
            Brazil
            Canada
            France
            Greece
            Germany
            Italy
            India
            Norway
            Portugal
            Singapore
            Spain
            Sweden
            The Netherlands
            UK
            USA
        Distraction Osteogenesis
        Cochrane Collaboration
        Links to Journals

Genetic Databases
    Links to genetic databases A-K
    Links to Genetic Databases L-Z
    Family Support Groups
    Research Reference Materials
        International HapMap Project
        WHO Genomic Resource Centre
        HuGENet
        Full text articles
    Bioinformatics Support

Clinical Outcomes Library
    Rating Your Centre's Study Models
        Learning Package
            Introduction and definitions
        Rating with reference examples
            Reference examples

Speech Project
    Aim
    Core Project Members
    Background
    Contributors
    Good Practice and Listening Exercises
        Good Practice General Information
            Equipment
            Setting
            Ages for documentation
            Speech material
                General information on devising speech material for data collection
                Speech material to be collected at different ages
                Specific speech material (language specific)
                    Single word lists
                    Short sentences
                Restricted speech material (cross-linguistic)
                How to elicit single word speech material
                Short sentences
                Collecting a spontaneous speech sample
        Good Practice Examples and Listening Exercise
            Danish
                Danish 3 year old
                    Restricted word test with target sounds - Part I
                    Restricted word test with target sounds - Part II
                    Spontaneous speech
                    Phonological / articulation test (language specific) - Part I
                    Phonological / articulation test (language specific) - Part II
                Danish 5 year old
                    Restricted word test with target sounds - Part I
                    Restricted word test with target sounds - Part II
                    Counting
                    Sentences
                    Spontaneous speech
                    Phonological / articulation test (language specific) - Part I
                    Phonological / articulation test (language specific) - Part II
            Norwegian
                Norwegian 3 year old
                    Restricted word test with target sounds - Part I
                    Restricted word test with target sounds - Part II
                    Counting
                    Spontaneous speech
                Norwegian 5 year old
                    Restricted word test with target sounds
                    Counting
                    Sentences
                    Phonological / articulation test (language specific)
            Polish
                Polish 3 year old
                    Restricted word test with target sounds
                    Counting
                    Spontaneous speech
                Polish 5 year old
                    Restricted word test with target sounds
                    Counting
                    Spontaneous speech
            Swedish
                Swedish 3 year old
                    Restricted word test with target sounds - Part I
                    Restricted word test with target sounds - Part II
                    Counting
                    Spontaneous speech
                    Phonological / articulation test (language specific) - Part I
                    Phonological / articulation test (language specific) - Part II
                Swedish 5 year old
                    Restricted word test with target sounds
                    Phonological / articulation test (language specific) - Part I
                    Phonological / articulation test (language specific) - Part II
                    Counting
                    Sentences
                    Spontaneous speech - Part I
                    Spontaneous speech - Part II
            English
                English 3 year old
                    Restricted word test with target sounds
                    Counting
                    Spontaneous speech
                    Phonological / articulation test (language specific)
                English 5 year old
                    Restricted word test with target sounds Part I
                    Restricted word test with target sounds Part II
                    Counting
                    Sentences
                    Spontaneous speech Part I
                    Spontaneous speech Part II
                    Phonological / articulation test (language specific)
    Essential Plug-ins
    Links
    References

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