Name of support organisation:
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Landsforeningen Laebe-Ganespalte (LLG)
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Part of another organisation or independent:
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Independent
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Geographical limits:
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The whole of Denmark including Greenland and The Faroe Islands.
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Organisational aims:
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The purpose of LLG is to promote knowledge about cleft lip and palate (CLP), about the treatment possibilities and to act in the best interests of the patients. Members of LLG are adults with CLP, parents to children with CLP and others with interest in the subject. LLG establishes contact between the members in the local communities, and between the members and parents to new born babies with CLP. |
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Governing body comprising:
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Users, patients and parents - five adult members and a member from the teenage group.
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Legal status and accountability:
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Main activities:
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- Information provision through magazine published four times per year
- Annual weekend meeting with lectures, group sessions and social events
- Assistance from social adviser
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Publications:
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- "Laebe-Ganespalte - en bog for familien", 3rd edition, Munksgaard, Copenhagen 2003. (Book written for parents describing all aspects of treatment, history of care etc.)
- "LLG-Bladet" - Members magazine produced 4 times per year.
- Book for children "Anne er foedt med laebe- ganespalte", 1st edition,
Komiteen for Sundhedsoplysning, Copenhagen 2005.
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Structured or informal support:
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There is no parent training but LLG has a contact list from which parents can contact each other.
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Number of branches:
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None |
Number of members:
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750 families |
Subscription cost:
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Membership costs DKR 150 per year.
Subcription to the magazine costs DKR 60 per year
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Number of public meetings per year:
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1 annual meeting arranged by LLG. |
Sources of funding:
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Various.
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Main contact details:
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c/o Michael Wagner Busk
Bymosevej 62
DK-3200 Helsinge
Tel: +45 4879 4939
Website: www.llg.dk
Email: michael.busk@mail.dk |
Member of European Cleft Support Network:
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Yes
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| Number of cleft centres in Denmark: |
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Two, one in Copenhagen and one in Aarhus.
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