Directory of European Resources > World Health Organisation (WHO)

In 2000, the WHO Human Genetics Programme, with the financial support of the United States National Institute of Dental and Craniofacial Research, launched a five-year project designed to implement an international research strategy on craniofacial anomalies. The goal of the International Collaborative Research on Craniofacial Anomalies project is to reduce duplication of efforts and achieve broader coverage of priority research needs by bringing together international researchers through collaborative partnerships, and to develop global consensus on CFA research directions and common research protocols.

		Download WHO publications here
Examination of a candidate for cleft repair surgery during a Philippines mission.

www.who.int/genomics/anomalies/en/ includes links to the following:

• International Collaborative Research on Craniofacial Anomalies project

  The International Collaborative Research on Craniofacial Anomalies project supported by the World Health Organization (WHO) is to establish an international networks for the purpose of encouraging research in craniofacial anomalies(CFA) under four main areas:

  1) the genetic basis of craniofacial anomalies
  2) hereditary and environmental interactions involved in craniofacial anomalies
  3) prevention of craniofacial anomalies
  4) optimal treatment of craniofacial anomalies

• Directory of resources

This directory of resources is a planned outcome of the CFA project-"Global strategies to reduce the healthcare burden of craniofacial anomalies". This project is developed in cooperation with the four team leaders to provide a comprehensive collation of resources including patient support groups, organizations, institutes and genetic databases. This directory is currently being developed and will expand in its coverage over time.

• International Database on Craniofacial Anomalies (IDCFA)

  The International Database on Craniofacial Anomalies (IDCFA) is a centralized, comprehensive source of information on individual cases of craniofacial anomalies gathered regularly from a global network of partnering birth defect registries and clinical databases developed to meet the global needs for data identified today.