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Name of support organisation:
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Belgian Association for Congenital Facial Defects, VAGA vzw.
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Part of another organisation or independent:
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Independent
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Geographical limits:
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The whole of Belgium
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Organisational aims:
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To provide support for parents, youngsters and adults born with cleft lip and palate and other craniofacial defects.
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Governing body comprising:
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4 official (non-paid) members of the VAGA-board and parent and patient volunteers.
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Legal status and accountability:
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Officially recognised by the Belgian federal government as a registered charity.
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Main activities:
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- Information provision (brochures, telephone helpline, website, publications)
- 'Open house' for parents and patients
- National and international lectures
- Assisting feeding
- Visits to new born babies
- Raising general awareness
- School program
- Advocacy
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Publications:
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- Several articles in professional books
- 'A face with a future' (2000) 2nd edition. Contains practical, medical and psychological information
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Structured or informal support:
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Structured. Training schemes are offered for volunteers.
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Number of branches:
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The co-ordination of the group throughout Belgium is done from Antwerp
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Number of members:
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46 volunteers
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Subscription cost:
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None
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Number of public meetings per year:
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7 or 8
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Sources of funding:
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Various, mostly service clubs.
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Main contact details:
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Jos Craeybeckxlaan 8 - B-2180 Ekeren Belgium
Tel: +32 3 542 37 80
Mobile: +32 3 477 / 60 40 96
Fax: +32 3 541 78 04
Website: www.vaga.be
Email: vaga@glo.be |
Member of European Cleft Support Network:
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Yes
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| Number of cleft centres in Belgium: |
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7
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