Directory of European Resources > Patient Support Groups > Syndrome specific support groups > Stickler Syndrome

Sticklers: www.sticklers.org
Online support and opportunity to share experiences with others with this condition

GeneClinic's Stickler Syndrome: www.geneclinics.org/profiles/stickler
An excellent overview of the disorder, including information about diagnosis and description, management, genetic implications, resources and references.

The Stickler Syndrome Support Group (SSSG): www.stickler.org.uk

• Offers information and support for people affected by Stickler syndrome, and for professionals.
• Leaflets about different aspects for Stickler syndrome. Conferences for members and professionals.
• Quarterly Newsletters for members to share experiences and keep up to date with advances in the medical world